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mily caregivers of patients affected by severe illness. It will provide new knowledge about intervention development, delivery, and evaluation in a palliative care context. Identification of factors before death and their association with family caregivers' preparedness and long-term health may change future clinical work. TRIAL REGISTRATION The study is registered at ClinicalTrials.gov NCT03676283.BACKGROUND To explore the lived experience of chronic pain and dyskinesia in children and adolescents with cerebral palsy. METHODS A converge