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BACKGROUND Qualitative research is recommended in concept elicitation for patient-reported outcome measures to ensure item content validity, and those developing measures are encouraged to report qualitative methods in detail. However, in measure development for children and young people, direct research can be challenging due to problems with engagement and communication. OBJECTIVES The aim of this systematic review was to (i) explore the qualitative and adapted data collection techniques that research teams have used with children and young people to gene
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