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Focus groups involved 13 participants. Three broad themes were identified (1) clinicians' use of language, (2) feeling unprepared for complications and (3) information needs of families. Conclusions Clinicians' language is often misunderstood, with wide variability in the way morbidities are described, and between differing teams looking after the same child. Information may not be easily absorbed or retained by families, who often felt unprepared for morbidities that arose after their child's heart surgery. Here, we propose key princip