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Caregivers were concerned about accessing appropriate medical care for their child, and also reported experiencing financial, relational, and emotional challenges in their families. Achondroplasia also affected individuals and their families in positive ways, including increasing empathy, receiving positive attention, and feeling supported by the achondroplasia community. These findings underscore the importance of regular assessments of HRQoL and the provision of psychosocial support to affected children and families. These findings u