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The ensuing Delphi question-naire ended up being administered over 2 rounds to patients, caregivers and health care professionals. The second-round survey included only topics which were strongly supported in the 1st round. A patient-oriented strategy ended up being used, with 3 patient partners as complete study team members, just who added to scoping, design, data collection, analysis and interpretation. OUTCOMES Twenty-one customers jus
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